We Must Act!
Hello my name is Lonnie. I live in Central Missouri, and I have had the pleasure of sharing my story with you over the past year. In 2007, the life I had grown accustomed to living came to an abrupt halt when I was diagnosed with a large brain mass. I often have flashbacks of that day when the neurosurgeon told me, “You have a large brain mass, and I can’t help you.”
Last year, I was diagnosed with intractable epilepsy, and the only option left to me is epilepsy surgery. In preparation for this surgery, I will be exposed to repeated seizures like this one over the course of two to three weeks. This means withholding my anti-seizure
medications and, if necessary, using strobe lights, sleep deprivation, and other methods to induce life-threating seizures. Even having the minimum of two more surgeries following these extreme tests does not guarantee a seizure free life, and I must continue taking the very medications that are poisoning me.
Like many Missourians who are desperate and have no options or who are only presented with the most extreme measures, I looked to CBD oil as a possible treatment for my illness. I exhausted all my resources to obtain a recommendation that would allow me access to CBD oil but to no avail. With such restricted access, Missourians like myself looked to our elected officials to pass legislation that would provide greater access to Missouri’s CBD program and, as expected, they left this crucial piece of legislation to die without a vote as the legislative session ended.
Since I started advocating for medical cannabis, I have had numerous opportunities to visit with other patients, families, and those who are dedicated to bringing compassionate care to Missouri. The support is tremendous and for the first time in many years, I know people are listening and acting in the best interest of Missourians who are out of options. We will no longer be stifled. This is our initiative and with every signature gathered, every dollar collected, and every story shared, we are one step closer to making medical marijuana available in 2018.
“It is not enough to be compassionate. You must act.” --His Holiness the Dalai Lama